SMA
Strive stands as a beacon of hope and advocacy in Pakistan’s healthcare landscape, focusing its unwavering efforts on Spinal Muscular Atrophy (SMA). As the sole organization dedicated to addressing the challenges posed by this genetic disorder, Strive has taken a holistic approach that encompasses treatment, data collection, diagnosis, and prevention. Through collaborative partnerships with international pharmaceutical companies, governmental bodies, philanthropic organizations, and kindred spirits worldwide, our mission is not only to provide accessible treatment options but also to gather critical data, enhance diagnostic capabilities, and champion prevention strategies. In this comprehensive endeavor, we envision a future where SMA patients receive the care they deserve, backed by accurate information and preventative measures.
Treatment:
Strive is the sole organization in Pakistan dedicated to advocating for Spinal Muscular Atrophy (SMA) patients. We collaborate with international pharmaceutical companies, government bodies, philanthropic organizations, and similar-minded entities worldwide. Together, we work to provide affordable treatments to patients through government dedicated funds, subsidies, and support from national and international donor agencies.
Data Collection:
A significant challenge in the context of SMA is the lack of available data on patients in Pakistan. Strive recognizes this gap and aims to bridge it by actively collecting crucial data on SMA patients. This information not only aids in understanding the prevalence and impact of the condition but also informs future strategies for treatment, diagnosis, and prevention.
Diagnosis:
Strive’s efforts extend to the diagnosis of SMA, aiming to ensure accurate and timely identification of the condition. By collaborating with medical professionals, research institutions, and diagnostic centers, we work towards enhancing diagnostic capabilities. This enables healthcare providers to offer swift and precise diagnoses, allowing patients to access appropriate treatments and interventions promptly.
Prevention:
Creating awareness and enacting preventative measures are key components of Strive’s mission. We advocate for national-level legislation to implement carrier screening and other advanced techniques for the prevention of SMA. Through educational campaigns, partnerships with governmental bodies, and collaboration with international organizations, we seek to raise awareness about SMA, its genetic implications, and the steps individuals and families can take to minimise its impact.
In essence, Strive’s comprehensive approach to tackling Spinal Muscular Atrophy encompasses not only accessible treatment but also data-driven decision-making, enhanced diagnostic capabilities, and a proactive stance on prevention. By uniting various stakeholders and raising awareness, Strive aspires to create a brighter future for SMA patients and their families across Pakistan.